The Surveillance Gap: The Harms Of Extreme Privacy and Data Marginalization

This article seeks to identify and understand the causes, contours, and consequences of the surveillance gap and to outline legal and policy tools for addressing it.

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Disease Tracking and Surveillance

Disease surveillance helps us detect disease cases, understand burden of disease and risk factors, provide the basis for timely and informed decision-making, guide control measures, and monitor impacts. Since the onset of COVID-19, surveillance efforts have worked to provide real-time tracking and forecast data, despite challenges with diagnostic capacity, case reporting, insufficient contact tracing, and fragmented data systems. COVID-19 has highlighted the need to invest in modern data systems, expand and skill up the workforce, and ensure data reporting and interpretation retain high ethical and epidemiological standards.